Thoughts on Eczema
This is a post that is really for those people who do a google search for "ways to help babies with eczema" or "coping with eczema in toddlers" and things of that nature. My eczema baby is 19 months old. He still deals with full body breakouts.
(All you wonderful friends and family who check in with us on a regular basis - don't feel compelled to read thru it all. It's pretty boring reading for most folks, I'm sure!)
Here are some things that we have discovered:
*No matter how you feel about medicine, the baby is going to need some. Work it thru your mind, because he needs it.
*You probably aren't going to be able to definitively determine the cause(s) of eczema. You may get close, though, so if you think something is a problem, then assume it is. It will never hurt to eliminate things.
*Sometimes cold weather helps, sometimes it hurts. Sometimes sunshine helps, sometimes it causes flareups. Sometimes warm weather helps, sometimes it aggravates everything.
*Try everything. Even if it sounds crazy. Something odd may just work. Unless you know it is harmful, of course.
*For example - as a side result of a breakout just before he developed a cold, I discovered that sometimes Tooter would sometimes get relief from a dose of baby motrin. By relief, I mean that the dose seemed to help his other medicines get to work faster than normal. I'm not prescribing it to anyone. Just forwarding what helps Tooter. At times. (See the next note).
*Don't think that just because something works now that it always will. Sometimes the skin just gets acclimated to one thing. Switch up lotions, bath washes, creams, etc. Unless you know something is crucial for maintenance. Otherwise, don't get frustrated when after a week of good skin, he has a breakout again. It wasn't necessarily something you did or didn't do.
*Don't think that just because something didn't work before that it won't work later. A lotion that used to irritate Tooter will now help him. (except in the worst of a breakout).
*When you're told to wash sheets in hot water and dry them in a hot dryer, do just that. Not warm water and a warm dryer. Hot. Hot, hot, hot. If you don't want to put your 2472 thread count sheets through that abuse, then maybe you need to get some regular sheets for now.
*"Whatever it takes" is a valid reason. In controlling head-to-toe eczema, you just do whatever it takes.
*We have learned that the more consistent Tooter's life is, the better his skin does. When we try to "go and do" too much, he suffers.
*You may notice breakouts before your little one gets sick. The skin seems to respond to a virus just before his other symptoms hit.
*You can't keep them in a bubble. I mean, you CAN. But who wants to do that to a child who doesn't HAVE to have it in order to survive?
*Prayer is not only important, but crucial.
*Don't ever think that you are being silly for being worried about it. It's not a serious disease like cancer. However, it is very disruptive to a child if they have a bad case of it. It is worth your concern.
*Don't feel guilty if you dread having to "grease up" your uncooperative, wiggly, fussy child. Don't feel guilty if you skip a greasing from time to time, because of the difficulty of it. But, try not to skip too many. Because the scratching in the middle of the night won't be worth it.
*You're not the only parent who spends all day with your hair looking extremely unwashed because your hands always have vaseline on them.
*You DO have hope that your child will outgrow it, if they have developed it this early.
*As irrational as it sounds, the pain from breaking the skin by scratching is actually better than the extreme itch of eczema. That's why they will scratch in the middle of the night. It's why they can not get back to sleep on their own. This skin disorder is tough, especially when it's happening to a little person who can't tell you what he needs.
*You're not alone, and you aren't going to go crazy. Not completely, anyway. :-)
*DO be grateful that your baby doesn't have something more serious. Being grateful for your blessings really will help you deal with the constancy of the problem.
*It's okay to get frustrated because you can't "fix it". The best you will be able to do for your little one is do what you can to try to prevent breakouts and then deal with the breakouts that WILL happen anyway. At least till they outgrow it.
*Don't worry when you feel a teeny bit sad after picking up a baby with clear, soft skin. Just remember the times between breakouts when YOUR baby's skin feels like that too!
*If your little one doesn't outgrow it, then take heart. He will be able to help with his own skin care as he gets older. And that might very well make things better.
That's all I can think of for now. I hope this helped someone out there!




